For family members of an individual with autism, finding the right resources for their loved ones can be a challenge. If you live in Indiana, you will find the state has numerous resources available for families, including access to information, legal insight, support groups and more. Here’s what to know about accessing autism resources in this state.

Autism Resources

Finding autism resources can seem overwhelming, but there are several state-wide resources that every family living with an individual with autism should know about.

Autism Society of Indiana

The Autism Society of Indiana (ASI) was established to help individuals with autism spectrum disorder and their families by improving their lives and putting them in front of important resources. The mission of this organization is to make sure that every family in Indiana receives the high-quality services they deserve.

Their goal is to make sure that their services are readily available across the entire state of Indiana, not only today but over the next five years. This organization offers:

• Individual and family support groups
• Direct care services
• Access to career services for individuals with autism
• Online resources and information
• Access to doctors for an official diagnosis
• And more!

The ASI exists to ensure every family in the state is getting the affordable and accessible support and services they deserve.

Indiana Resource Center for Autism

The Indiana Resource Center (IRCA) works on behalf of individuals across the autism spectrum. This organization works to provide a number of resources for individuals living throughout the state of Indiana.

These resources include free family webinars, comprehensive programming for students across the autism spectrum, and access to workshops by nationally recognized professionals. This organization also offers individual consultations and school district support for public schools around the state.

Indiana Family and Social Services Administration

The Indiana Family and Social Services Administration (FSSA) is an organization dedicated to helping individuals in Indiana live productive, safe and healthy lives. This health care and social service agency.

As part of this state-wide organization, individuals with autism and their families can get access to home and community-based services as well as necessary healthcare. This organization places particular emphasis on individuals who need financial assistance as well.  

Legal Services

There are disability legal services available throughout the state of Indiana, designed to help individuals with autism and their families with important resources.

DLSI

The Disability Legal Services of Indiana, Inc. (DLSI), is a nonprofit organization dedicated to providing free and low-cost legal services to children and adults with disabilities, with a primary focus on education. This organization provides legal consultation and representation when it comes to special education services and individual education plans.

This organization empowers children with disabilities in the area with low-cost or no-cost legal advocacy to ensure access to proper educational resources.

Nursing Home Abuse Guide

The state of Indiana also has legal services available to protect individuals with disabilities and potential nursing home abuse. While many residents in long-term care facilities are well-cared for, nursing home abuse is a serious problem in the United States today. The state is taking charge of making sure that any individual with disabilities, including those with autism, are legally protected against this type of abuse.

Nursing home or caregiver abuse should never be tolerated, and this organization helps families look for the signs this abuse so that they know who to contact to ensure their loved one has the protection they deserve.

ABA Therapy

In addition to some of these non-profit organizations and state-sponsored services, individuals in Indiana can access what is known as ABA therapy. Also known as Applied Behavior Analysis, this is one of the most common types of treatments available for individuals on the autism spectrum.

This type of therapy is available throughout treatment centers in Indiana and it is effective because it is based on learning and behavior modifications and can be highly individualized. Aba therapy should be administered under the discretion of a Board-Certified Behavior Analyst. By using services such as Golden Care Therapy, families can actually get in-home care so that their children can live happy, independent and fulfilling lives.

ABA therapy covers:

• Language skills
• Skills acquisition
• Behavior modification
• Activities of daily living skills
• Social skills
• Executive function (learning and memory)

ABA therapy can be the key for many children to start living independently and these programs can also help family members and loved ones as well. This comprehensive approach is covered by many insurance companies and is a valuable resource for many families not only in Indiana but across the world.

With this information, any individual living in Indiana can start finding the quality autism support and care that they need. No one dealing with autism should have to feel like they are alone, which is why these programs are available throughout the state.

 No matter what your current situation is, there are resources available, you just need to know where to turn in order to get the autism support you’ve been looking for.

 

If you are ready to work with the best ABA therapy provider in Indiana, give us a call at (317) 406-0072. Our dedicated team is ready to help and we will treat you like family.

 There are more children than ever being diagnosed with autism today. However, while this condition is common, there are still a lot of questions surrounding autism spectrum disorder (ASD), including whether or not autism is genetic.

Here’s what to know about this neurodevelopmental condition and what may or may not cause it.

What is Autism?

Autism spectrum disorder (ASD) or autism, is a neurodevelopmental condition that impacts how a person learns, communicates and interacts with others. Autism is truly a spectrum and different individuals may be impacted by this condition differently.

The term actually refers to a broad range of conditions all characterized by challenges with repetitive behaviors, social skills, speech and nonverbal communication patterns. According to the Centers for Disease Control (CDC), in the United States today, 1 in 44 children are impacted by autism spectrum disorder.

There isn’t one type of autism, but many types and subtypes. Because of the variability of autism, individuals with this disorder are each going to have different sets of strengths and challenges. The way that individuals with autism learn and problem-solve can vary greatly depending on the individual. People with ASD can range from highly skilled to severely challenged. Some individuals with autism do not need any intervention to live their everyday lives, while others may need significant support in their day-to-day lives.

Why Are Some of the Indicators of Autism in a Child?

Since autism can impact different children differently, it isn’t always so cut and dry when determining whether or not a child has ASD. This is billed as a “developmental disorder” because some symptoms generally appear in the first two years of life, and typically by age three at the latest. Some developmental delays associated with autism may appear as early as 18 months, but there are some children on the spectrum whose symptoms don’t fully materialize until they are in a classroom setting.

Here are some of the most notable indicators of autism in a child.

• Loss of communication skills
• Language development delays
• Repetitive actions including flapping arms and spinning
•  Avoiding affection
• Lack of eye contact
• No or limited facial expressions
• Intense reaction to sound, smell, taste or light
• Preference to play alone instead of with others
• Inability to function in school or other areas of life
• Difficulty interacting with others
• Unusual eating and sleeping habits
•  Anxiety, stress or excessive worry
• Unusual mood or emotional responses
• Having lasting, intense interest in specific topics or facts
• Being overly focused on certain interests
• Repeating words or phrases
• Being more sensitive or less sensitive to sensory inputs like  sound, clothing or temperatures

Parents who notice signs and signals like this, should take their child to a specialist for more information and a formal diagnosis. The diagnosis process includes feedback from caregivers, medical examinations, assessments and observations and may also include blood tests or hearing tests as well.

The American Academy of Pediatrics recommends that all children receive some type of formal screening for autism. Research shows that early intervention is one of the best ways to have a better positive outcome later on in life for people living with autism.

Is Autism Genetic?

There are a lot of questions surrounding autism and why certain individuals are diagnosed with this condition. One of the biggest questions parents tend to have is, “Is autism genetic?”

Due to autism’s complex nature and the myriad of symptoms surrounding this disorder, it is likely that ASD has many different causes and that it isn’t just genetic. Researchers have determined that both genetics and environment likely play a role in autism.

However, keep in mind that geneticists believe that there are several different genes involved in autism spectrum disorder. In fact, they believe that up to 80% of the risk of developing autism all comes down to genetic factors.

The risk from gene mutations, in addition to environmental risk factors come together to determine the likelihood of a child developing ASD. So, in addition to paying attention to genetics, it’s also important to look at some of the increased risks that may impact a child’s likelihood to develop autism.

Increased Risks That Your Child Will Have Autism

 

There has been a lot of research on autism and what may cause this developmental disorder. While there is still a lot to learn, medical professionals have made great strides in better understanding autism. Experts have come to find there are several risks that a child will have autism, including the following:

• Premature birth before 26 weeks
• Advanced age of either parent
• Low birth weight
• Disorders such as fragile X syndrome or Rett syndrome
• Genetic conditions such as down syndrome
• Siblings with ASD
• Pregnancies spaced less than one year apart
• Heavy metal and environmental toxin exposure
• Poor nutrition during pregnancy
• Lack of folic acid during pregnancy
• Diabetes, obesity or preeclampsia during pregnancy
• Family history of autism

These risk factors can make it more likely for a baby to eventually develop ASD, although these are not necessarily absolutes. Since a lot of these factors have to do with pregnancy, many women want to know if they can detect autism during their pregnancy.

Can Autism Be Detected During Pregnancy?

Since no single cause for autism has yet to be determined, it can be very difficult to screen for autism spectrum disorder when a woman is pregnant. Of course, by keeping the aforementioned factors in mind, women can do their best to stay as healthy as possible during their pregnancy and be aware of different risk factors for autism, so that they can get a proper diagnosis, should they see some of the signs and signals of autism when their child gets older.

While experts still have a lot of questions surrounding autism and genetics, the good news is, there have been many advancements in different therapies that can be used for kids and adults like those who struggle with ASD.

 

If you are ready to work with the best ABA therapy provider in New York, New Jersey or Indiana, give us a call at (732) 402-0297. Our dedicated team is ready to help and we will treat you like family.

 

Contrary to popular belief, nonverbal autism is not exactly a type of autism. It’s a term used to describe patients with autism spectrum disorder (ASD) who don’t know how to communicate verbally. This article dives deeply into what nonverbal autism is, what parents can do to help their children, and more. 

 

What Is Nonverbal Autism?

Nonverbal autism is a term used to describe patients on the spectrum who cannot communicate verbally. This symptom often occurs in people with severe or level 3 autism.

 Children with level 3 autism have trouble expressing their needs verbally and nonverbally. They have quite a limited ability to talk. When they do speak, their words may be slurred and awkward. As a result, they may struggle to interact socially and form lasting bonds with peers. 

Having nonverbal autism doesn’t necessarily mean that your child may never learn to speak. However, it will take time and treatment to get your child to a level where they can communicate well.

 

What Percentage of Autism Is Nonverbal?

It’s not uncommon for patients with autism to struggle with communication or speech delays. Some patients may get by with minimal professional assistance. Others may need more support than their more functional counterparts. 

About 1 in 44 children in the US alone are diagnosed with ASD, according to the Centers for Disease Control and Prevention (CDC). An estimated 25% to 30% of these children are either minimally verbal or never develop functional speaking skills. These patients speak no more than 30 or fewer words – if at all.

 Below are some signs that a child with autism may be nonverbal.

 

Signs That Your Child Will Be Nonverbal

A few common signs that your child may have nonverbal autism include the following:

 

• He or she didn’t mumble or make noises as a baby.
•  He or she avoids eye contact.
• He or she doesn’t use gestures or communicate in other nonverbal methods.
• He or she doesn’t respond when spoken to or when their name is being called.
•  He or she doesn’t use body language to express themselves.

 

Nonverbal autism isn’t so easy to identify in a patient with ASD. It’s normal for patients with ASD to struggle to communicate using conventional techniques. There’s also a possibility that your child could just be in the preverbal stage of their development – the level at which verbal language development takes place. 

A doctor may interview your child to determine their verbal state. Parents, guardians, and teachers may also help in the process by providing the doctor with insight into the patient’s language history.

 

How Can a Nonverbal Child Learn To Communicate?

 Raising a child with nonverbal autism can be twice as challenging. Fortunately, there are alternative ways for children with nonverbal autism to communicate their needs to their parents.

A few examples include American Sign Language (ASL), picture cards, and mobile or digital tools. 

Here’s a list of methods and techniques parents can use to help their children communicate.

 

Functional Communication Training (FCT)

 

Functional Communication Training is a treatment designed for children with nonverbal autism. It teaches children on the spectrum to find alternative ways of communicating their needs. By identifying the underlying purpose of challenging behaviors in children with ASD, FCT can help patients learn new ways of communicating that require less effort.

 For instance, your child might be upset about his favorite cereal running out but doesn’t know how to communicate his feelings. FCT can help the child learn how to ask for more cereal, either by using gestures or communication aids like flash cards or digital devices.

 

Encourage Play and Social Interaction 

Playing with your child provides them with various opportunities to learn and have fun. It can help them learn languages more effectively. Plus, it offers a great avenue for your child to learn how to communicate.

 Start by playing a variety of games if you don’t know what your child already likes. A few examples include singing nursery rhymes, playing dress up, or just spending some time outdoors.

 

Simplify Your Language

Children with autism can’t process words and phrases as fast as their typical counterparts. Simplifying your language makes it easier for your child to understand you. It also puts them in a position where they can easily imitate your words. 

Parents of nonverbal children should speak mostly using single words. Slowly increase the word count as your child gets accustomed to your speech.

 

Imitate Them

 Imitating your child’s speech and actions may encourage them to vocalize and interact more. Don’t worry about feeling awkward or even embarrassed the first few times you try to imitate your child.

Soon enough, you may notice your child will start to copy your actions and speech too. You can take turns copying each other’s sounds and movements.

 

Use Assistive Technologies and Visual Supports

 Assistive devices and visual supports can help children with autism develop functional verbal skills. Pictures and flashcards are types of visual support that can help children with ASD learn about language. 

Additionally, software and apps that teach children how to pronounce and spell words can also help children with autism develop speaking skills.

 

ABA Therapy and Nonverbal Autism: How It Can Help

Parents may feel disheartened or overwhelmed when they first learn that their child has nonverbal autism. After all, every parent only wants what’s best for their children. 

The good news is that the autism level that your child is initially diagnosed with is not a life sentence. Children with autism can improve their communication functions with the right assistance from evidence-based Applied Behavior Analysis (ABA) Therapy. 

Developmental delays in language and nonverbal communication are common among children with autism. ABA helps children on the spectrum work through their developmental issues using scientifically proven therapeutic techniques.

This therapy is based on the use of rewards to reinforce desired behavior. It encourages nonverbal children to speak rather than relying on nonverbal cues.

Consider ABA therapy as an alternative option to help your children develop better communication skills. Check for available facilities in your area and select one that fits your and your child’s needs.

 

If you are ready to work with the best ABA therapy provider in New York, New Jersey or Indiana, give us a call at (732) 402-0297. Our dedicated team is ready to help and we will treat you like family.

In order to become a Registered Behavior Technician (RBT) in New York City, you will need to meet certain age and education standards, complete a rigorous training program and pass a handful of exams. Here’s what to know about the journey towards becoming an RBT.

 

What is an RBT?

A Registered Behavior Technician is a professional who is trained to help individuals with behavior challenges.  The primary goal of an RBT is to provide ethical and quality behavior analysis services to those who need it most, using ABA therapy methods.

The goal of an RBT is to help bring impactful changes in the lives of patients who struggle with certain behavior deficits. These professionals will not be creating treatment plans but must know how to apply ABA therapy treatment plans directly to their patients. This type of therapy focuses on developing certain skills in people with developmental conditions such as autism and helping them learn the skills necessary to control certain behaviors and thrive in real-world settings. This may include:

• Learning or studying
•  Verbal or nonverbal communication
• Life skills
• Behavior modifications

Typically, these therapy sessions are performed in a clinical setting, but some RBTs may need to perform these services in a client’s home or school programs. Certain RBTs may even enter into specialties to deal specifically with certain types of behavioral problems.

This is an entry-level healthcare position, so while RBTs are working directly with patients, they will also be under the supervision of behavior analysts. While RBTs work closely with many individuals with autism and are often most known for their work in the autism community, they also provide services to individuals with mental health needs and developmental delays.

 

What do RBTs do?

RBTs are involved in administering care to those with behavioral challenges. These behavior specialists work in clinical settings under the supervision of a Board Certified Behavior Analyst (BCBA), who has further training and education in Applied Behavior Analysis (ABA).

The RBTs will help administer behavior treatment and work with individual clients or small groups of clients. Any individual working as an RBT must be well-versed in some of the most standard requirements of the RBT task list. This includes:

• Measurement
•  Assessment
• Skill acquisition
• Behavior reduction
• Documentation and reporting
• Scope of practice and professional conduct

RBTs work together with their supervising ABA professionals to directly deliver this type of therapy to their clients and need to be well-versed in these areas. Some clinics may also have additional requirements for the RBT list.

After becoming a certified RBT, individuals need to maintain professional certification. This includes ongoing supervision, adhering to the ethics of Aba practice, and renewing the certificate (45 days before expiration) every year. 

 

How long does it take to receive an RBT degree in New York?

An individual interested in receiving an RBT degree in New York must complete a 40-hour training course and then pass the RBT exam at the end of their training. Students can do this quickly or spread the training out over time if they have an existing job to do.

Training will be overseen by a qualified BCBA.

This program is both knowledge-based and hands-on and is designed to help improve the application and understanding of Applied Behavior Analysis. In addition to learning about ABA, those going through this training program will also need to learn about administrative work.

The training must be completed before applying for the RBT certification and before sitting for the test. Applicants must complete the initial competency assessment in New York within three months of submitting payment for their RBT certification application. Once the application is approved, students are allowed to sit for the exam.

Before enrolling in this educational program, RBTs must meet certain requirements.

 

Prerequisites for RBT training in New York

In order to enroll in the Registered Behavior Technician training program in New York, there are several prerequisites that you need to meet, including the following:

• Being at least 18 years old.
• Completing a high school diploma or GED.
• Passing a background check.
• Completing the training.
• Completing a competency assessment.
• Passing the RBT exam.
• Maintaining certification with continuing education.

There are many potential RBTs who are worried about the exam. The exam typically has around 75 questions and results are given on-site, so students will know right away if they pass. Students who do not pass the exam the first time will be able to take it again in one week. There is typically an exam appointment fee of $45 and a certification application processing fee of $50.

Once interested individuals with these requirements pass their training certification they can start applying for jobs in behavioral centers and clinics.

 

How much does an RBT make in New York?

The average salary for an RBT in New York varies depending on experience, training, hours, and the individual behavioral center. The typical average falls between $40,443 and $51,016. These technicians can make as low as $12,024 or as high as $60,665 per year depending.

Many RBTs will work hourly in New York, and their average hourly rate typically comes out to $20.37 per hour. Many individuals will continue to earn more with experience and may consider going back to school to add more certifications to their existing certificates.

 

How much does RBT training cost in NY?

Many individuals considering a career in RBT often first worry about the cost of this training program. There are free programs available for those interested in becoming one of these technicians, but the average training program costs between $65 and $200. This means it’s more than worth the initial investment cost for the solid income provided.

Behavior analysts are in high demand, meaning becoming an RBT can be a great career choice and one with steady pay and the potential for growth in the future. Plus, it is a career that allows you to truly give back to others.

 

If you are ready to work with the best ABA therapy provider in New York, give us a call at (732) 402-0297. Our dedicated team is ready to help and we will treat you like family

There are many New York families who have members with autism, and who want to know about Medicaid and autism treatment. In New York, there are a few different options for those on Medicaid to help with autism care—here’s what every family needs to know.

 

What are the NY Medicaid Waivers for Children with Autism?

There are often a lot of questions about Medicaid and what it can and cannot do to help cover the costs of autism care. New York currently has two Medicaid waivers that accept children with autism.

• HCBS 1915(c) waivers
• Waive parent income

Let’s take a look at both waiver options.

 

HCBS 1915( c) Waivers

Home and Community-Based Services (HCBS) are designed to help children, their families, and their caregivers. This waiver will help support children as their work towards their goals and achievements. This waiver offers personal, flexible services designed to meet the mental health, substance use, or developmental needs of each child.

If you have a child with autism, you may be looking into HCBS waivers as part of their care. This waiver applies to children who meet the following requirements:

• Children who need extra care at home or when out in the community
• Children who want to avoid going to the hospital or long-term care facility
• Children who are found eligible for HCBS
• Children who are enrolled or are eligible to enroll in Medicaid

All children eligible for HCBS should contact a Health Home Care Manager through the state in order to get approval for this waiver.

 

Waive Parent Income

Under the Waive Parent Income model, the parent’s income and assets are waived during the financial eligibility process. There are many parents who assume they won’t qualify for Medicaid for their child with autism because of their income, but there actually is a special waiver in New York specifically designed with these situations in mind.

This means if you have a child with autism who needs additional care, the child is considered eligible for Medicaid on their own, even though he or she is living with their parents. The Parent Income Waiver is designed to help lessen the costs associated with providing optimal care for a child with autism.

 

Are Children with Autism Eligible for CDPAP Caregivers in NY?

CDPAP, or Consumer Directed Personal Assistance Program, is a New York-based Medicaid program available for individuals with autism. This program was established to help chronically ill or disabled individuals who need help with daily living activities. This particular program covers older individuals who need care but who no longer would require for programs designed for adolescents.

There are many families who aren’t currently aware that they can get reimbursed to care for a child with disabilities, including those with autism. This program assists a patient with activities of daily living, including:

• Meal preparation
• Personal hygiene
• Light housework
• Transportation 

A parent can qualify as a full-time paid CDPAP caregiver for a child with disabilities, but only if the child is 21 and older. Parents of children younger than 21 are not allowed to act as CDPAP caregivers. They are legally responsible for the child and as such can’t be caregivers under the CDPAP program. However, once the child would no longer be the parent’s legal responsibility, parents, or other family members can apply to be part of this program.

The program has a number of benefits for those who need companionship or who can’t care for themselves. The CDPAP also has other benefits compared to traditional home care health services, including the following:

• Beneficiaries can choose their own caregiver.
• Caregivers don’t need any special certifications or licensing.
• Patients’ loved ones are able to provide care and be paid for providing care.
• Beneficiaries are able to receive better care at home and need fewer hospital visits under care of a friend or family member.
• The service is free for beneficiaries as part of Medicaid.

If you have an older child who needs ongoing care, the CDPAP program may be a valuable option worth pursuing. It helps make the cost of care more manageable and helps compensate families who need to take time off of work in order to care for their loved ones, taking some of the pressure off of families who need to care for adults with autism who are not independent.

 

Does Medicaid Cover ABA Therapy?

One of the biggest questions that parents of children with autism have is whether or not Medicaid covers ABA therapy. Simply put, yes, Medicaid will cover this type of therapy.

ABA therapy has become one of the most prevalent and important treatments available for individuals with autism. This form of therapy helps kids with autism learn skills and lessen problematic behavior including harming themselves. ABA therapy teaches them more valuable ways to handle some of these behavioral challenges.

There are several forms of ABA therapy out there, each catering to different forms of autism. This type of therapy can improve social skills, and language abilities and help with communication. The Medicaid insurance mandate covers the diagnosis, and treatment of autism, including this type of ABA therapy.

 

What is Included in Treatment?

Medicaid has come a long way when it comes to coverage of different autism treatments. In addition to ABA therapy, the following services for individuals with autism are covered as part of Medicaid:

• Assistive communication devices
• Medical care
• Pharmacy care
•  Therapeutic Care (including physical therapy and occupational therapy)
• Speech Therapy

The goal of these Medicaid programs is to help make sure that every family who has an individual with autism is able to access the additional care and services necessary to keep these individuals well-cared for and thriving. With more information on what these programs cover, you can make more informed choices about your family’s autism care needs.

 

If you are ready to work with the best ABA therapy provider in New York, give us a call at (732) 402-0297. Our dedicated team is ready to help and we will treat you like family

 

As a family member of an individual with autism, support groups can be one of your most powerful tools in improving your relationship. Autism support groups can help you learn new strategies to be the best family member and provide support for those on the spectrum as well.

Here’s how to find the best autism support groups in NY to meet your needs.

Spectrum Services

If you are looking for Spectrum Service groups, you will find there are a handful of these support groups throughout New York. Spectrum Services is a popular organization because they have specialty support groups that cater to all types of situations and are available for individuals on the spectrum as well as their family members.

Here are some of the company’s most popular groups.

• Spouse/Partner Group- These free support groups are for the neuro-typical partner in a neurodiverse couple, or for an individual who is not on the spectrum and is in a relationship with an individual with autism. The partner group is one of the few in the area that specially caters to spouses.
• Family Support Group- This free support group is specifically for family members or relationship partners with individuals who have Asperger Syndrome or similar conditions. This is a great group for parents and siblings alike.
• Adult Support Group- This free support group is for individuals with, or who suspect they have, Asperger Syndrome or another related condition. Any adult who is on the spectrum or who believes they may be on the spectrum is welcome in this group.
• Women’s Group- This group is solely for women who are on the spectrum, who have Asperger Syndrome, or who may suspect they are on the spectrum. All women who qualify are welcome in this support group.

You can learn more about this group by visiting Spectrum Services online. Here you will also find more detailed information about each of these groups, where they meet, and what their goals are.

AHA

AHA, or Asperger Syndrome and High Functioning Autism Association, provides support groups on Long Island and New York City. These groups cater to adults, families, and teens with Asperger’s or high-functioning autism. The goal of this organization is to provide crucial resources and support throughout their lifetime.

They do this by hosting different support group meetings, which can be found on their company website. We love that this organization specifically caters to adults as well as teens.

Autism Society of WNY Support Meetings

The Autism Society of Western New York is available to provide resources for those in the Western New York area who want to learn more about autism spectrum disorders. This organization has different local support groups including parent support groups. They can also provide members with access to other support groups in the greater Buffalo area. Their comprehensive list of area support groups will help individuals with autism find the exact type of group they ae looking for that can cater to their specific challenges.

 

Grand Island Autism Support Group

This peer-run support group known as Grand Island Autism Support Group was founded in 2009 to help connect families in the area who are part of the autism community. This organization has a massive online community and interactive Facebook page, along with many in-person support groups that meet throughout New York. This support group specifically caters to family situations of all types and is ideal for caregivers, siblings, and parents alike.

Group For Parents of Children with ASD

There are a lot of parents out there who need a little support when it comes to raising children on the spectrum. This is why there are organizations like the Group For Parents of Children with ASD. The goal of this group is to provide a welcoming environment for parents and other caregivers of children with autism spectrum disorders so they can meet, share experiences, ask questions, and more important receive support.

This group is based out of Cheektowaga, New York, and prides itself on helping parents find the community they need to be the best parents possible.

Tips For Finding the Right Autism Support Group

The good news is, there are a lot of autism support groups in the greater New York area, meaning individuals with autism and their family members have a number of options when they need a little more support.

If you have never tried a support group before, finding the right group can seem overwhelming. However, the good news is, support groups are designed to be welcoming and inclusive. Here are a few other tips to keep in mind when trying to find the right autism support group.

• A group that is convenient for you. Most groups meet once per month, and you want to ensure that the location allows you to attend as many meetings as possible.
• A group that encourages feedback. Support groups aren’t just about you getting help from others but about others getting help from you. Look for groups that encourage open talking and communication.
• A group that caters to your niche interest. If there is something specific you are struggling with, such as being a spouse to an individual on the spectrum, make sure to look for groups that specifically cater to that interest, so you get as much as possible out of it.
• A group that is part of a larger organization. This is a great way to make sure you are getting additional support and have access to other resources that can help you along your journey.

Keep these tips in mind as you start looking for a support group that works best for you. Every support group is different, just like every person is different and you want to find a partnership that feels supportive towards your individual needs.

With this information in mind, it is time to get out and start finding the right autism support group for you. No matter what your current situation is, there are support groups in the greater New York area that can cater to your dynamic. Finding this right support group can make all of the difference in your autism journey moving forward.

 

 

 

If you are ready to work with the best ABA therapy provider in New York, give us a call at (732) 402-0297. Our dedicated team is ready to help and we will treat you like family.

Children with autism do well in structured environments but may struggle once the school calendar ends. Luckily, there are several summer camps in New York that cater to them.

At these camps, the kids can learn a wide range of skill sets that often receive less attention during the school term.

Transitions Summer Camps

Camp Address:

2736 State Highway 30

Mayfield, NY, 12117 US

Phone- (518) 775-5384

Transitions offer a variety of summer programs to individuals with autism, nonverbal learning disabilities, ADHD, and other learning challenges. These individuals would otherwise be at home and prone to significant regression during the summer months.

At the camps, participants can learn various skills, such as:

• Executive functioning
• Leadership
• Self-advocacy
• Social relationship building
• Wellness
• Independent living

Transitions summer programs focus on students between the ages of 15 to 27. You can choose to either attend as a day scholar or stay overnight in dormitories with roommates.

Types of Transitions Summer Camps

1.     Summer Immersion Experience

This is a two to three-week readiness program for students diagnosed with autism spectrum disorders, ADHD, and other learning differences, who want to proceed to college and stay alone or with roommates. The list of activities includes:

• College tours
• Visits to companies, studios, galleries, performance venues, and museums
• Group road excursions
• Exploratory Adirondack trips
• Social training
• Career Searching
• Academic preparation
• Independent living skills
• Artistic arts classes

2.     Weeklong Specialty Camps

Young adults can learn different aspects of independent living more comprehensively via a focused curriculum. At these camps, participants will learn:

• Problem-solving skills
• Creative thinking skills
• Experience Adirondacks excursion
• Outdoor trips
• Creative art classes

Isaacson Gordon Lodge

Camp Address:

653 Colgate Road

East Jewett, NY, 12424 USA

Phone- (518) 589-6000

 

The Katy Isaacson and Elaine Gordon Lodge is a one-of-its-kind summer resort for teens and adults with intellectual and developmental challenges.

At the lodge, you get to relax and have fun in a non-restrictive but supervised environment. The bordering Catskill Mountains, private lake, and earthy grandeur create the ideal vacation spot for visitors.

The Lodge offers 5 and 11-day vacations. Among these, there’s a session for young adults aged 18 to 29 and a session for teens aged 13-17.

Each session allows up to 70 guests. Each participant has free-of-charge access to chartered bus transportation. The guest-to-staff ratio is 3:1, ensuring personal attention to every participant.

At Isaacson Gordon Lodge, you can experience a wide range of fun-filled activities, such as:

• Swimming in a heated pool
• Boating rides on Lake Capra
• Dance sessions in hip-hop, contemporary, salsa
• Creative arts classes
• Music classes led by music aficionados
• Sports activities such as volleyball, baseball, basketball, races
• Ride on ponies around a paddock
• Evening activities happen on the last day of the camp. The activities include themed dances, game nights, carnivals, talent shows, fashion shows, and barn dances.

Adirondack Expressions Art Camp

Camp Address: 

Paul Nigra Center for Creative Arts

2736 State Highway 30

Gloversville, NY, 12078 US

Phone- (518) 661-9932

 

Bring out the budding artist in you by participating in a weeklong session at the Adirondack expressions art camp.

Young adults of ages 15 to 27 with autism and other learning differences can immerse themselves in different art forms at the magnificent Adirondack Mountains. Participants enjoy meals, activities, art classes, and accommodation in local supervised apartments at the Paul Nigra Center.

The average staff-to-participant ratio is 2:1, so participants can expect personalized attention. You will participate in different activities and social events, which will foster your individual talent, creativity, social interaction, and confidence.

You will attend two art classes daily and cover topics such as:

• Drawing
• Painting
• Music
• Theater
• Paper crafts
• Cooking
• Photography
• Woodworking

At the end of the weeklong session, there’s an exhibition where your parents, family, and friends can visit to see what art forms you’ve been working on for the entire week.

Camp Reece

Camp Address:

Camp Reece

1782 S. Johnsburg Road

Johnsburg, NY, 12843 USA

Phone- 212-289-4732

 

Camp Reece is a sleep-away camp based in the idyllic Adirondacks Mountains. It provides a completely immersive and appealing setting for individuals between the ages of 10 to 17 with disabilities. These individuals often need differentiated instruction and customized activities to ensure they participate entirely and successfully.

With a structured weekly schedule, you can take part in different programs, including:

• Arts: Graphic design, multimedia, organic gardening, culinary, and photography
• Adventure: Field excursions, high ropes courses, water sports, and whitewater rafting
• Sports: Soccer, swimming, biking, tennis, and more

Through these programs, you will not only experience fun. You will also build new skills, self-esteem, self-confidence, and social-emotional growth, which you will carry with you long past your time at Camp Reece.

Camp Green Tree

Camp Address:

409 E. 45th St.

New York, NY, 10017 United States

Phone- 212-867-9594

This is a neighborhood camp located right in the heart of the city. It offers an inclusive program for students with or without special needs to take part in traditional summer camp activities that incorporate academics, social skills, and practical language development.

The highly trained staff plan and coordinate theme-based sessions that intertwine reading, social skills, math, computers, music, art, park visits, soccer, swimming, and field excursions.

The Green Tree summer experience is open to students between the ages of 4 to 13. Students and activities are categorized into age-appropriate classes. A session can accommodate up to 50 students.

The Bottom Line

Don’t rush to sign up for any summer camp. You should first check their website, read customer reviews and interview the staff if you can. You could also visit the facility accompanied by your autistic child to see if it’s a good fit for their needs, interests, and personality.

Some of the important aspects you should be looking for are a low staff-to-camper ratio and the quality of the program. 

 

 

If you are ready to work with the best ABA therapy provider in New York, give us a call at (732) 402-0297. Our dedicated team is ready to help and we will treat you like family

 

 

 

ABA Therapy: Payment Options for Parents in New York

Applied behavior analysis, or ABA, is the most widespread accepted therapy for children with autism.

In New York, there are several options when paying for ABA therapy no matter your income level. Below, we will discuss each in detail and provide some links to resources that can help you make the best decision for your child.

Paying for ABA with insurance

The most common way people pay for ABA therapy is through insurance. Many commercial and government-sponsored health plans cover ABA therapy, though the coverage can vary greatly.

If you have insurance, the first step is to contact your insurer and ask about coverage for ABA therapy. You will likely need to provide them with information about your child’s diagnosis and treatment plan. Once you know what your insurer will cover, you can start looking for providers who accept your insurance.

One way to find in-network providers is to use the Autism Speaks Provider Directory. This directory includes over 3,400 ABA providers across the United States who have agreed to accept insurance. 

When vetting these services, make sure to ask about their experience working with children on the autism spectrum and whether they accept your specific plan.

If you’re having trouble finding an in-network provider, you can also contact your insurer directly and ask for a list of recommended providers. 

Out-of-network providers may also be an option, but you will likely have to pay more out of pocket. If you have exhausted your in-network options without a solution, try message boards or online support groups for parents of children with autism. You may be able to find someone in a similar situation who can recommend a provider.

If neither of those options applies to you, co-payment is also an option. 

Co-payment assistance

For those with less-than-ideal insurance coverage or high deductibles, some organizations can help with the cost of ABA therapy. These organizations typically have a list of in-network providers and will work with you to assist your co-pays or deductibles.

Let’s take a look at some of the best options among these organizations.

Autism Care Today

One of these is Autism Care Today, which offers grants of up to $5,000. It has helped more than 1,500 families nationwide with autism-related expenses and has given out more than $1.85 million since 2005. 

They also offer separate programs for military families and those in need of immediate treatment. The application process is simple and can be completed online.

C.A.R.E Foundation

The California Autism Resource & Evaluation Foundation may not sound like an organization that can help New Yorkers, but they offer grants to anyone in the U.S. that makes less than $75,000 per year. The best part about this assistance is there is no yearly deadline – C.A.R.E. will accept applications at any time.

Cerner Charitable Foundation

Not only will Cerner help pay for ABA treatment in New York but they also offer grants for travel, lodging, and vehicle modification if necessary. A good thing to remember is that not all of these organizations will be able to offer ongoing or yearly grants. Cerner, for instance, only offers a maximum of three in a child’s lifetime.

United Healthcare Children’s Foundation

This nationwide charity offers support to families with a wide variety of medical expenses and therapies based on improving the life of a child. This application is online-only and requires proof of non-coverage from an insurance company or some other form of documentation.

If you have exhausted some of these grants or require another source of assistance, there is a third option available to some people. 

Is ABA therapy covered by Medicaid in New York?

Yes! In 2019, New York formed the Children’s Waiver, which covers children with autism and can help provide wrap-around coverage. 

The waiver essentially means that Medicaid eligibility is based on the child’s income instead of the parents, allowing them to be covered by the program. That helps to cover the gap between what private insurance will cover and what parents can afford to pay out of pocket.

Since the prices of ABA therapy can be extremely expensive – as much as $250,000 per year, depending on a child’s specific needs – even those families that don’t normally qualify for Medicaid will need substantial assistance. 

This waiver allows Medicaid to pay for ABA therapy for children with autism regardless of the family’s income. 

If you think your child might be eligible for this waiver, contact your local Medicaid office or regional Front Door office, which offers services provided by the Office for People With Developmental Disabilities. 

For those parents who are 65 and above, there are also Medicare options that are available.

Insurance providers that GoldenCare works with

One of the country’s oldest insurance brokers for long-term care, GoldenCare is now working with ABA insurance providers in New York including:

• Aetna Better Health of New York
• Cigna Health Insurance
• UnitedHealth Group/Optum
• Horizon Blue Cross Blue Shield
• WellCare of New York
• Beacon Health Options
• EmblemHealth

Any of these companies can be a great resource for you and your family as you seek out coverage and providers for ABA therapy. For more information about GoldenCare’s services, contact them toll-free at (888) 825-0231 or get a free online quote.

Final thoughts

For those families that are dealing with an autism diagnosis, ABA therapy is often the best option available. It can be expensive, but there are ways to offset the cost. New York offers several programs that can help families pay for ABA therapy, whether it’s through insurance, grants, or Medicaid.

If you’re not sure where to start, the best thing to do is contact your insurer and ask about coverage. You can also speak with your child’s doctor or a local autism support group for recommendations on providers in your area. 

No matter what level of income you have, there is an answer out there to provide your child with the best possible care.

 

If you are ready to work with the best ABA therapy provider in New York, give us a call at (732) 402-0297. Our dedicated team is ready to help and we will treat you like family

 

 Children with autism may find shopping centers and grocery stores overwhelming. These places typically have large crowds and disturbing noises that a child on the spectrum can find disturbing or frightening. Thus, most parents have difficulties shopping with a child with autism.

Here are some reasons why shopping tends to be unenjoyable for children with autism:

 

Why Is It Difficult To Go Shopping With a Child With Autism?

Shopping with a child on the spectrum can be a stressful experience. As a parent, you might be worried that your child might inappropriately address or touch other shoppers. You might also be apprehensive about your child having a meltdown or tantrum in the middle of the store.

 Children with autism experience shopping differently from their neurotypical counterparts. They might find it difficult to navigate due to several factors, including:

 

Sensory Processing Disorder

Most children with autism have sensory processing disorders that make their senses oversensitive to stimulation. When exposed to excessive noises, bright lights, or strong smells, a child with autism can feel overwhelmed. This phenomenon is often referred to as sensory overload.

 

Risk of Meltdowns

Meltdowns are common among children on the spectrum. It happens when a child with autism is exposed to overwhelming situations or emotions they can’t process independently. As a result, the child loses control over his behavior and ends up yelling, crying, screaming, or even committing self-injury.

 

Anxiety Triggers

It’s common for children with autism to experience high levels of anxiety in unfamiliar or uncomfortable situations. This can make your and your child’s visit to the shopping center more difficult.

 

Routine Changes

Children with autism thrive when they have structure and organization in their lives. When an aspect of their routine changes, it can feel terrifying and uncomfortable for them.

 Shopping can be one of those deviations that happen in your child’s usual schedule. Visiting a strange place with large crowds and loud noises can feel bizarre and scary to your child.

 Luckily, there are ways parents can improve their little one’s shopping experience.

 

Tips for Shopping With a Child With Autism

Parents can help make shopping trips much more pleasant for their child with autism by employing tried and tested strategies such as the following:

 

Prepare for the Trip

While shopping might be a small undertaking for most people, for a child with an autism spectrum disorder (ASD), it’s not the same case. Before you even think about bringing your child to the store, it’s important that they know what to expect.

Talk to them about what to expect from a typical shopping center. Let them know why and when you’re going there. Finally, answer any questions they want to ask and accept any feedback they might have without judgment. 

Communicating with children on the spectrum can be difficult. Consider using social stories, visual aids, or even flashcards during your conversation to help your child understand you better.

 

Use Applied Pressure Techniques

Deep pressure therapy provides a calming effect on children with sensory processing disorders. When used correctly, it can help reduce stress and anxiety in individuals with autism. It can even make a short visit to the grocery store more bearable for the patient. 

There are several ways you can administer deep pressure therapy to your child, such as swaddling, making your child wear a weighted vest, or giving your child a firm hug.

 

Give Your Child a Play-by-Play

Let your child know exactly what’s going to happen during your trip – give them a play-by-play of your “strategy.” Let them know what you’re doing in the store and when you’ll be doing them.

 One way to do this is by creating a list of steps for your child to follow. It could look something like this:

 

• Step 1: Drive to the grocery store.
• Step 2: Grab a cart and go inside the store.
• Step 3: Gather all the items on the grocery list.
• Step 4: Push the cart to the checkout counter and pay the cashier.
• Step 5: Take the groceries back to the car and place them in the trunk.
• Step 6: Drive home.
• Step 7: Arrive home, unpack the items bought, and play a game of their choice.

 

You can write other things on your child’s list besides the steps for your shopping trip. For instance, consider including a list of challenges or obstacles that your child should expect. This could be anything from loud noises to cold temperatures.

 

Let Them Be Part of the Experience

Allowing your child to play an active role in your shopping experience may improve the way they see the activity. Little things like letting your child push the cart or asking them to pick items off the shelf are two examples of how you can easily involve your child in your shopping.

 

Reward Good Behavior

Children with autism can feel motivated to repeat an action or activity if they’re rewarded for it. For instance, allowing your child to play an extra hour of their favorite game after a successful trip to the grocery store may encourage them to make the trip with you again.

 Rewards don’t necessarily have to be tangible. A small smile or a simple “good job” can go a long way for a child with ASD.

 

Keep Trips Short

Keep your shopping trips short and sweet, especially during the first few visits. Children with autism are easily overwhelmed by noises, people, and smells – things that are terrifyingly abundant in shopping centers. Prevent meltdowns and outbursts by slowly lengthening your visits to the store.

 

Bring Items of Comfort

A comfort item can help distract your child when they’re feeling overwhelmed or overstimulated. It can also help calm their nervous system, preventing outbursts and meltdowns. If your child has a favorite stuffed animal or toy, consider bringing it during your shopping trip.

 

Final Thoughts

 Shopping can be an overwhelmingly terrifying activity for children with autism. Fortunately, you can help your child cope with the experience more easily by using calming practices and strategies during your visit. Encourage your child to explore and venture into new environments so they can develop useful and long-lasting life skills.

 

If you are ready to work with the best ABA therapy provider in New York, New Jersey or Indiana, give us a call at (732) 402-0297. Our dedicated team is ready to help and we will treat you like family.

 

Meltdowns or outbursts are common among children with autism. They can be caused by situations or emotions that your child may find frustrating, difficult, and new. As a parent, it’s important that you know how to help your child work through overwhelming emotions and feelings.

 

What Is a Meltdown or Outburst?

Children and teens with autism may experience meltdowns or outbursts as an intense response to a challenging or overwhelming situation. Patients on the spectrum find it difficult to process heavy emotions such as anxiety or anger in a normal way. Thus, they find an alternative route of expression: a meltdown.

 

During meltdowns, patients temporarily lose control over their behavior, resulting in shouting, screaming, crying, and lashing out. When a patient is overwhelmed but doesn’t know how to express themselves effectively, a meltdown is an understandable result.

 

As a parent or caretaker, you shouldn’t see this as bad behavior coming from your child. Instead, look at this as your child’s way of asking for help.

 

Children with autism show different signs of distress before having a meltdown. You should know what signs to expect to effectively respond to or assist your child when needed.

 

What Do Outbursts Look Like?

Patients with autism may experience meltdowns differently than others. Some patients are more vocal than others, choosing to scream, cry, or shout to express overwhelming emotions. Other patients are more physical, choosing to hit or lash out at their parents in response to a frustrating situation.

 

In some cases, children on the spectrum may also withdraw from their surroundings. They might try to find a small and quiet place to hide and protect themselves from overstimulation. Luckily, meltdowns are preventable – if you know what signs to look out for.

 

Signs of an Outburst

 

Generally, the patient may show signs of anxiety or worry. For instance, they may start pacing the floor or rocking back and forth. They may also try to seek reassurance from a parent or caretaker through ceaseless questioning.

 

During the early stage or the “rumble stage” of a meltdown, there’s a chance for you to divert your child’s attention and prevent a full-blown meltdown from ensuing. Some recommended strategies include diversion, listening to music, playing with fiddle toys, or removing potential triggers from your child’s environment.

 

Here are a few signs of an autism meltdown that may occur before or during a patient’s episode:

•  Irritability or aggression
• Fidgeting or repetitive movements
• Repetitive noises
• Frustration over small things
• Trouble focusing on a task
• Shielding ears or eyes from sensory input

 

Outbursts or meltdowns aren’t the same for everyone on the spectrum. Monitoring your loved one’s episodes and taking note of their symptoms can help you come up with more efficient strategies to ease their discomfort.

 

Try to record everything that happens during your child’s meltdown. You may notice patterns in your child’s outbursts, triggers that you never considered before. Find aspects of the environment that you can improve or make more comfortable for your child.

 

If you’re struggling to find an effective solution to your little one’s outbursts, there are other tried and tested methods that you can try.

 

What To Do When Your Child with Autism Is Having an Outburst

Despite your constant efforts at preventing your child’s outbursts, it’s not always avertible. Remaining calm and collected in the face of a meltdown is one of the first steps you should take as a parent. When you’re calm, you make your child feel safe and secure in your presence.

 

Other strategies you should consider when helping a child on the spectrum deal with an outburst include:

 

Giving Them Time

Meltdowns aren’t caused by a single event or emotion – it’s caused by a combination of factors that the patient finds difficult to process. As a result, the patient can become overstimulated by sensory input, stress, sudden emotional shifts, and even normal bodily functions. Giving the patient time to refocus is one of the best things you, as a parent or caretaker, can do.

 

Avoid questioning your child or pushing them to explain what’s wrong. Instead, give them a few minutes to gather themselves.

 

Making Space for Them

 

Moving your child to a quieter, less crowded space can help calm them down during an outburst. If it’s available, a pair of noise-canceling headphones can also help your child block out auditory sensory overload. During a meltdown, your child may also not like to be touched or felt.

 

As much as possible, avoid touching your child and keep other people away from them while they try to process what they feel. Tell other people to move along and avoid staring at your child while he’s having an episode. Do what you can to minimize sensory overload for your child.

 

Identifying Their Triggers

 

Children on the spectrum have various triggers that eventually lead to meltdowns. Identifying these triggers and removing them from your child’s immediate environment can help prevent them from experiencing more frequent outbursts. Some common triggers for children with autism include:

 

Sensory Considerations

A child with autism may be over-sensitive or under-sensitive to certain senses – sometimes even a combination of both. When a child experiences sensory overload from a sense that they are over-sensitive to, it may result in a meltdown.

 

For instance, if a child is overly sensitive to sound, hearing loud music or chatter in a public place can feel overwhelming to them. When the situation isn’t managed correctly, it can result in the child melting down. One option is headphones for children with autism.

 

Routine Changes

Children with autism are creatures of habit – they don’t like sudden changes to their routines. If something new comes along that creates tension in their daily activities, it can feel frustrating and overwhelming. Give your child the chance to express their distress over their new situation.

 

Later, you can help them make the transition by using simple methods such as timetables and calendars that allow them to track when and where a change will occur.

 

Difficulty Communicating or Being Understood

Children on the spectrum have a difficult time expressing their wants and needs. This is yet another trigger for meltdowns and outbursts. To help your child through communication difficulties, you may try the following strategies:

• Provide your child with visual supports that help them communicate their needs clearly (e.g., flashcards, picture books, visual aids).
• Use shorter and clearer sentences when communicating.
• Take advantage of devices like tablets, phones, and communication software.
• Help your child increase their understanding of emotions and social cues.

 

Final Thoughts

Meltdowns are common among patients with autism and are often caused by sensory overload and overstimulation. Parents of children and teens on the spectrum can help them manage meltdowns by becoming more familiar with what meltdowns are and what strategies can help ease their children’s worries.

 

By focusing on the root of the issue, parents can better understand what needs or wants their child is trying to communicate.

 

If you are ready to work with the best ABA therapy provider in New York, New Jersey or Indiana, give us a call at (732) 402-0297. Our dedicated team is ready to help and we will treat you like family.